Wednesday, October 20: Update

Things should be settling down again in the next two weeks once we’ve transitioned to the new home, and I’ll be more diligent at making posts again. For the time being, however, the blog is getting shorted on attention. It’s odd to love back over the last five days since we closed: a lot has happened.


I’ll start with Claire. Because of the Friday closing, Claire didn’t have her normal horse therapy session. She resumed on Monday with Tiffany as a saddlemate again. Claire improves with each successive lesson. Claire showed us just how much stronger her trunk is on Monday: Claire held her body upright with little support and sat back in the saddle rather than flop forward. It’s fun to watch her focus when she’s on the horse: her pupils close down and her eyes fixate. We’re seeing this focus in other areas as well.

Some friends who has not seen Claire in a while commented on her improved focus last Friday. Claire tracks to movement as it enters her vision now. Her eyes are more purposeful and she uses them to identify sensory sources. Tiffany has noted that Claire has little trouble finding her now, which is much different than a month ago. We feel that her awareness is becoming more acute and her sensory skills are improving.


Yet we have still had some hard days. Claire’s vomiting issues ebb and flow. They are much less frequent, but when they show themselves, it makes for a difficult day. Our plan is to be more aggressive with her nutrition plan after we get settled into the new house. Claire is still on a majority formula diet; once the move is done, we’re going to start experimenting with more real foods and bolus feeds as opposed to pump feeds. We hope that helps remove the volatility from her stomach.


There is a lot going on around Claire and that may be contributing to her nervous stomach. After we closed on Friday, we got to work on prepping the home. Jon and I were at the house until the wee hours of the morn’ removing the popcorn ceiling on the second floor. It was messy work. Delirium started to set in around 11:00 PM when we had to get the stairwell ceiling scraped. Since only one ladder leg could fit on the stairs, Jon pretended to be the other while I climbed up and scraped the ceiling. Dangerous, yes; but what’s a whole home remodel without a little intrigue?


The intrigue continued into Saturday. We had about ten people show up to help prep the house for this coming Saturday’s work. The task list included removing wallpaper from the kitchen and bathrooms, sanding down walls, priming the ceilings, removing molding, taping the windows and floors and installing the garage door opener. We accomplished most of the work; however, new items popped up. The virgin run for the garage door opener started well but ended tragically when the top panel on the door buckled. The previous owner had rigged the door to operate manually, but the load from the mechanical opener was too much. So we’re getting a new garage door. Next, the wallpaper in the kitchen didn’t come off as cleanly as we’d have hoped, so all the walls needed to be floated. After another late night, it was difficult to get up on Sunday.


I took Heidi and Autumn with me Sunday morning. They explored while I floated the kitchen walls. Tiffany showed up mid-morning and we all started taking turns watching Claire while the rest primed the ceilings and walls. We were making good progress and at the end of Sunday, we were on track for this Saturday’s work. When I say on track, that doesn’t mean the work was done professionally. The work was good enough, however, we knew that we would have to go back and redo some work on the house once we were moved in. But we had a deadline to keep.


After a zombie like performance on the soccer field, I came back to the house Sunday evening to work on a borrowed paint sprayer that had quit on me. The owner of the sprayer is a local Coppell contractor that had lent me the machine to expedite work. His arrival on Sunday night to help with the sprayer ended up being something much bigger. My friend Brian and I followed Larry around the house while he shook his head and picked apart the work we’d done. By the end of the night, Larry had convinced me to let his crew come in and do it right.


So here’s the deal: I’m paying for the parts. Larry is supplying all the labor. For a week. In a house that is being completely redone. I was at the house last night and the work is immaculate. The crew has removed the deck from the backyard completely. They floated nearly every wall in the house. They’re retexturing the walls today. And the house will be painted by the end of the week. (Don’t worry those of you who are coming out on Saturday: we have much more to accomplish than painting).


Tiffany and I have been overwhelmed. We are at a loss for what Larry, his crew and Sylvia Dendy are doing for us (Sylvia is the one that called Larry and is feeding his crew this week, and I suspect doing much more that she refuses to divulge to me).  We are trying to think of ways we can show Larry how much it means to us, while also learning how to be humble enough to accept his gift. One way I can give back is to share the story. Larry does exceptional work. If you are doing any work, I encourage you to call him. He’s honest, straightforward and skilled. His company is called the Home ER and he can be reached at 214-914-1609. I’ll be posting before and after pictures when all is said and done and you can see his work firsthand. It’s awesome.


Needless to say, we are excited to move into our new home. We are looking forward to seeing so many of you this Saturday. It’s going to be fun. If you are planning on coming and need the address, please reference the Facebook page or email me at for it.


Thank you for your continued prayers and support. Please continue to pray for Claire’s progress and that it moves forward. We are getting another round of Botox injections next Monday and we hope that helps alleviate some muscle irritation in her legs. Talk to you soon!

13 thoughts on “Wednesday, October 20: Update”

  1. That is such a blessing about Larry and the crew helping your family in such a huge way. I will definitely write down his # and call him the next time I need work done at our home. Thank you.

    Still thinking of and praying for your Claire and family. (We have a Claire too.) Glad to hear that the horse therapy is working!!! 🙂 God bless.

  2. Thanks for the update Tyler. Please know that our prayers are for your entire family, as you have all been through something traumatic, not just Claire.
    God bless you all!

  3. What a blessing! Larry has done work for us and his crews always do a great job. He’s a big man with an even bigger heart. You are in good hands!!

    So glad to hear the hippotherapy is helping. My daughter has spina bifida and has been doing hippotherapy for nine months. It is truly amazing what it can do.

    May God continue to bless your family. My family’s prayers will be with yours.

  4. What an exciting time for you all! It is such a privilege to witness how God’s love is always present and perfect for what is needed. Larry and his team are just that. Prayers for a smooth transition.

  5. amazing update – clair’s progress is wonderful. always thinking of you and your family – have a wonderful weekend with everyone and good luck.

  6. I’m so glad to hear things are going really well for all of you. Claire’s progress is exciting — especially her focus and continued improvement in hippotherapy — as is the work on the house. Sounds as though Larry is truly an answer to your prayers. What a wonderful person and what terrific friends you have in Sylvia, Brian, Jon and many others who are there to lend a hand in so many ways! With God’s help, most things just fall into place, don’t they? Good luck this coming Saturday! Can’t wait to see the before and after pictures.

  7. Love your update! I am so happy about the generosity that surrounds your family. You deserve it. Accept what’s given to you during a time of need and keep giving back when you can. I am thrilled about what Larry is doing for you and the things he has accomplished. There is nothing like leaving disarray in the hands of a contractor for a day, and returning to discover pristine handiwork completed… it’s like magic! And such a relief.

    My thoughts continue to be with your family, and much love is sent your way.


  8. So glad the house is getting ready for move in! Larry sounds like a gift from God. Gratitude and passing the word along is all the “paying back” necessary. Claire’s continuing improvement in focusing and core strength is another gift from God. I pray that once you settle in, her stomach will settle down too. This is an exciting time that can be unsettling for her. You’re in my prayers, Dodie

  9. I think about Claire and your family every day. You’re always in my prayers, and I’ve missed your updates. This one is wonderful. I love the way God humbles us by providing more than we ask for. It will be lovely if this act of generosity increases Larry’s business, but the real beauty is the no-strings-attached compassion behind the gift. People pouring into your lives and refusing to even admit to all they’re doing. It’s overwhelming, isn’t it?

    So thankful for Claire’s progress, for the support that surrounds you, and for God’s unwavering faithfulness. We see only a small portion of all He’s accomplishing. May the trials and struggles never overshadow the wonder.

    Much love,

  10. CONGRATULATIONS on the new house! I wish I was there to help in any way. All I have to say is: you guys needed a bigger house for your BIG HEARTS!! you guys deserve this house more than anybody,

  11. The house looks great and larry and crew were angels in a time of need and God sent the rain for grass with perfect timing. GOD is good all the time

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