5:30 AM Mountain Time, our day started.
Claire was just wheeled back to the operating room. Her spine is being fused today (from her S2 to her C2) to correct her scoliosis (sideways curve of the spine) and kyphosis (rounded upper back). She has more than 100 degrees of curvature in both directions.
This has been a long time coming. Our original surgery date in October 2017 was pushed back due to an ulcerative colitis flare.
We expect Claire to be in the OR for another 6-7 hours and then transferred to the PICU for 24 hours recovery followed by at least 2 days on the inpatient floor.
We will provide another update by the end of day tomorrow to let everyone know how the OR time went.