At the same time we seem to be stuck in time, we also feel like we don’t have any of it left. Before we know it, we’re looking up at the clock and it’s 11:00 PM and we’re wondering where did the rest of the day went. Sleep seems to be an afterthought, though we feel like the Sandman is always stalking us, lurking around every corner. It’s different from those first three months with a baby. Then we felt like we were the ones chasing sleep, and it was ever elusive. We couldn’t get enough. That’s not the way it is this time. I’m tired. But I feel other burdens and I fight the urge to sleep. I feel like I ought to be doing more. More research. More therapy. More focus.
This has always been the albatross around my neck. I’ve felt that any problem, issue or opportunity can be overwhelmed. Friends and family are amused with my approach to new hobbies. When I find something new to pursue, I go all out. I digest inordinate amounts of information, structure my own training regimens and immerse myself in the new culture. This is the last subject matter I would have chosen to pursue. It’s certainly not a hobby. My tendencies, however, are put to good use with Claire. I feel that there is always something new, something better that we can do for Claire, so I chase after it every day. But this requires a lot of time as well.
My sleep gets the leftovers. And it’s not a priority for me. Not yet. I will be soon, either by my own choice or foisted upon me when my body says “Enough!” I have a solid understanding that balance is the best approach, not only for me, but also for Claire and my family. If I don’t take care of myself, then it will be hard to take care of them. I understand that; but I don’t abide by it. Not yet.
While I may not be getting as much sleep as I need, Claire is sleeping like a pro. She is getting nearly 12 hours of uninterrupted sleep each night and her reserves are being replenished. She captures another one to two hours with naps during the day. Today I rolled her on her stomach for a while for a change of pace: she got so comfortable she fell fast asleep. We’re learning new methods to add variety into Claire’s routine so that she feels more comfortable and less frustrated by the mundane. Being on her belly was just one of our attempts. It’s nice when the experiments work and we discover a new tool to fight the malaise.
Claire wrapped up her week of scheduled therapy at Grapevine OCH today. She had another productive day and we learned some new therapies that we can utilize at home. We are pleased with the first week and her new therapists. They have been a great source for new ideas and they are proactive with Claire’s plan. We appreciate that and are glad we added them to our Claire Team.
Thank you as always for being a part of the Claire Team. We hope the end of the week is a good one!