Sunday, August 15: Update

We got tired of waiting for the replacement knee pad to arrive for Claire’s standing frame. So we fashioned our own. Claire was having a tough morning. She was responding to leg stretches and we wanted to see if putting some weight on her legs would alleviate some of the pain. It did. Claire stayed in the standing frame for just over 30 minutes and was calm and collected the majority of the time. She was also much more subdued after she came off the frame. We were so encouraged by the results we put her back on the frame this evening when she was getting agitated again. She calmed down again and stood for another 30 minutes. We intend to use the frame on a daily basis now and hope it will produce recovery results for Claire.

We spent the rest of the day trying to catch up on some rest. We got bits and pieces, but the weekend was still too short. I’d say that we’ve got a big week ahead of us, but that would indicate some relativity, that it’s different that previous weeks. They’ve all been the same. There’s always something new to qualify the week as “big;” we hope those things are steps in the right direction for Claire.

Thank you again and sleep well.