The respiration therapy we started yesterday is producing a positive outcome so far. The only element we’ve employed to date is the use of a percussion massage on her back and chest. It has done an effective job of making the congestion more loose: Claire has been coughing without gagging and hasn’t thrown up since yesterday.
Claire is very sensitive right now to any kind of stimuli. I spoke with the doctor this morning and discussed strategies to avoid over-stimulation. At the top of the list is limiting visitors. We’re playing soft music right now, the blinds are drawn and she’s tucked in to bed. It’s been a while since we’ve had a baby, and those first three months of infancy memories are coming back.
The frustration I felt yesterday has abated somewhat after my discussion with the doctor. We also got our appointment for our first care conference set for Tuesday at 11:00 AM CDT. The doctor told me that they are still in the evaluation phase with Claire and waiting to see how she responds to different tests. Her agitation continues, albeit at a lesser degree than yesterday’s, and that prohibits some therapies. He did indicate that he is happy — a word he told me he regrets using — to see that her muscle spasticity is not as rigid as expected. He also encouraged us to continue bringing things up like the respiratory issues because it helps them deliver care.
The care OCH delivered this morning was again with occupational and physical therapy. Claire did better today than she did yesterday: she wasn’t as agitated and the therapists were both able to get her to calm down completely at different points during the sessions. The goal right now is to stimulate her muscle groups, theoretically hoping to trigger her neurological and muscle memories of what they could due prior to the injury. The other benefit is that Claire’s range of motion will be improved and muscle toning will be avoided. Aside from the sessions, Tiffany and I will be doing the exercises with her twice during the day.
I anticipate another update later today. Thank you for your thoughts and prayers.