Friday, June 4: Update 1

Last night Tiffany and I sat together and read the comments to the last update. The stories and encouragement helped us at the end of a very hard day.

I haven’t had a chance to meet with the doctor yet this morning. Last night was uneventful. Claire was tired from the days events and slept accordingly. Her drug intake is lower, however, it is an ever changing cocktail of medicine as doctors seek to balance keeping her as comfortable as possible and making her discomforted enough to wake up. There’s no formula for her body, so doctors are frequently changing her dosages and adding or subtracting meds.

Tiffany felt encouraged this morning after her time with Claire. The night time nurse and Tiffany both see signs that Claire may be responding to Tiffany’s voice. Claire’s agitation is apparent and frequent now as she tries to wake herself up. While it’s hard to watch, Tiffany said that when she talks Claire’s vitals seem to moderate and her eyes seem to attempt focus on Tiffany’s face. It’s not conclusive, but it is enough to bolster our spirits this morning.

Claire is still on the ventilator.  We don’t have a time line for getting her off the ventilator. It has to be operating at some key support levels before the doctors will discontinue use. We decreased support a little last night and will continue to decrease support throughout the day. It will be nice to get the tube out of her throat because it seems to be a major source of her discomfort.

So the waiting continues. This has been the longest break between updates and for those of you who are visiting the site often, I apologize for the delay. Thank you for continuing your prayers. I will post again after I meet with the doctor this morning.

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54 thoughts on “Friday, June 4: Update 1”

  1. Hello. I don’t know you, but I am neighbors with Mike Brier. I have been praying and praying ever since we found out about this a couple days ago. I have not prayed for something this often in a while and Claire is on my mind a LOT. I saw the blog before the last and your last word I think was miracle and that is exactly what I have been asking for. For you to have your baby back. Please know that these prayers are far extended. I told my family, mom, sister, friend at church, they ask others to pray and we will keep on. I just wanted you to know that we are thinking of you and your child and praying for a miracle.

  2. I am so proud of y’all! Glad the night was good and that you are still in good spirits and full of faith. We are hoping that you feel the love and support coming your way, you are not alone in this journey! Thank you for the update and hope that each and every moment keeps getting better and better! 🙂

  3. Hey Tyler and Tiffany, it’s Aubrie, Lorie and Gabe’s daughter. We have been praying everyday, through the hours of each day, for God to put his hand on Claire and be with her. Reading your updates each day brings me to tears because i cannot begin to imagine what you are going through. But we must stay strong in the Lord….this is his plan for Claire, though hard and difficult to understand, He knows why this is happening, and He is by her side every second. God can do mighty things, and He hears you, he hears us all. He knows all…..Keep praying and never lose Faith in the Lord. Claire is not only your daughter, but his first.

    Jeremiah 29:11…..” For I know the plans I have for you”, declares the LORD”…plans to prosper you and not to harm you, plans to give you hope and a future. ”

    We love you all and will continue to lift Claire in our prayers everyday.

    The Thurmans

  4. We are Praying!

    I remember the moment you are at. The hope the fear. The uncertainty the frustration. Waking up to another morning in the same hospital chair realizing one more time you are not dreaming but God is good and Clair is here! I am holding onto God’s promises for full restoration for Clair!

    I am so excited that she is responding! That is HUGE! What a MIRACLE! Please, Please, Please let me know if there is anything that I can do for you guys!

    Believe… Prayer Works!

    Pam and Makenzie
    makenziesmiracle.org

  5. Again, we don’t know each other, but I am praying for Claire and your family 🙂
    I saw this verse right after I read your last post:

    Psalms 46:1-5 God is our refuge and strength, a very present help in trouble. Therefore we will not fear, even though the earth be removed, and though the mountains be carried into the midst of the sea; though its waters roar and be troubled, though the mountains shake with its swelling. Selah There is a river whose streams shall make glad the city of God, the holy place of the tabernacle of the Most High. God is in the midst of her, she shall not be moved; God shall help her, just at the break of dawn.

  6. Tyler, I’m so sorry to hear about your daughter’s accident. I have prayed for her and your family and will continue to pray through the healing. It is heart wrenching to read about what you, Tiffany and the girls are going through. Please let me know if I can do anything for you all. Lisa

  7. Dear Tyler.
    im happy to hear about claire responding. i still pray for your family and i pray for claire.

    I held my little Dylans hand this morning and we prayed for her together then he smiled at me.. I really meant it when i told you our children are gods little angels.

  8. I can do all things through Christ who strengthens me!!

    Claire and you all are lifted up in prayer today!!! I am anxious to see your next update. I pray for Claire’s bodyto be healed!

  9. Continuing my prayers for Claire and the family. The agonizing wait must continue, I know it must be pure hell. God has seen fit to let her remain here, keep the faith, he will heal her.

  10. Tyler and Tiffany,
    We’ve never really talked, but my son and Autumn are in the same class at IBC- I taught Autumn’s Zone Jr. class a few years ago. I know EVERY child is different, but my son was in a VERY similiar situation when he was a baby. Since I found out about the accident, I have been praying incessantly for Claire and your whole family. We’ve got word out to prayer warriors in across the state. Claire is in wonderful hands. When I got home after I heard, God led me to Jairus’ story in Mark and Luke- it seems so simple yet is so diffcult, but the verse has been laid on my heart to give you- “Do not be afraid, just believe, and she will be healed.” I am believing for you and for Claire!
    Lisa

  11. Thank you for the updates on Claire’s condition. I am so glad that we are able to offer encouragement and prayer support, if nothing else. We are keeping Claire a top priority on our prayer list. I’m sure that having faith during this difficult time is hard, but please know that there is great power in prayer. Even medical doctors have acknowledged this, as is evidenced by miracles that can not be explained in any other way. I encourage you to get a Bible if you don’t already have one and read the many verses between its covers on hope and encouragement. The Bible also says that God will not tempt (test) us above that which we are able, but will provide a way of escape. Still praying, even as this is being typed.

  12. We were thankful to hear that Claire seems to be responding to Tiffany’s voice. Hearing is the first to come back so keep giving Claire hope and suport. We thank God for every little step. Here is a hug for you all.

  13. Praying for Tiffany, especially, today!!
    God speak your words of encouragement to Little Claire through Tiffany today, and as she speaks, Tiffany will hear your words love towards her. Tell them how much you love and cherrish them. Let Claire be soothed by her Mamma’s voice and let Tiffany be soothed by her ‘Papa’s’ voice.
    Much love and tenderness,
    Aunt Gina

  14. Tyler and Tiffany,
    The Lord is with you, and as I been praying for Claire and you, I want to share this verse that the Lord put in my heart: ” Do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.” Isaiah 41:10

    With Love, your sister in Christ, Monse

  15. Our love is with each one of you, all things are possible with the love of our kind and powerful God. Claire is so precious and her family will be supplied with the gifts and wisdom they need when they ask, each and every moment. People call us each day to say you have their continued support, people DO care! Our media so often paints a very dim picture of the goodness in our world, we are seeing that goodness in every moment since this period of our lives began on Sunday. So many individuals have crossed our paths with so much love, may we all continue to recognize this hand of God working among us. We love each of you so much. Grandma and Grandpa, Greatgrandma and Greatgrandpa Simons.

  16. My thoughts are with your family. I was where you are 18 months ago after my daughter had a choking accident on a piece of fruit. For your entire family, I will hope and watch for a complete recovery for your girl – and know that there are a lot of us who have been in a similar place that walk this road together. It is long and hard and bumpy, but you are definitely not alone. I am not a religious person, but all of my thoughts and hugs are with you as you continue on your journey. Visit my blog if you like, I will help in any way I can.

  17. Tyler & Tiffany,

    You don’t know me, I saw this on a friend’s Facebook page but I am absolutely heartbroken for your daughter and family. I have many people praying for little “Claire” … a child I’ve never met but I know as a mother how much I desperately want this baby to heal. May God bless you and bless your beautiful Claire!

    Habakkuk 17-19: “Though the fig tree does not bud and there are no grapes on the vines, though the olive crop fails and the fields produce no food, though there are no sheep in the pen and no cattle in the stalls … Yet, I will rejoice in the Lord, I will be joyful in God my Saviour. The Sovereign LORD is my strength; He makes my feet like the feet of a deer, He enables me to go to the heights.”

  18. Tiff, Tyler and family,

    Your family is not far from so many people’s thoughts and more importantly our prayers. As God continues to unfold His plans for your family and little Claire, I pray that you all will find peace and rest!

    All love,
    Lindsay

  19. Thank you for your constant updates. I look for them each day as I continue to pray for your family and Claire. God is a God of detail and He is orchestrating each decision for dear Claire. Each one of your family is precious to our Lord and He has each one of you in the palm of His hand. Take courage and keep resting in His love.

  20. Hi. I don’t know you but saw Claire’s story on a friend’s Facebook. Just wanted you to know that prayers and hugs are coming in from around the world, from connections you will probably never know! It’s amazing. My son was born at 28 weeks and I know those days of sitting & praying by a child’s bedside. I hope you continue to have strength and that Claire will be in your arms soon.

  21. Even though I don’t know you, I became aware of your situation through someone at Mountain Springs Church in Co Springs. We were having VBS drama practice and stopped to pray for you and your precious daughter. I will continue to pray for her complete healing and that God will sustain you all! I think some of your relatives go to Mt Springs. May the God of all comfort , comfort you with His love, peace and faith.

  22. Tyler and Tiffany,
    My prayers are with you every day. You have the love and support from friends, neighbors, co-workers, and people that you don’t even know. Most importantly, you have God’s love and guidance. Take care and know that we all care so very much for you and your family.

  23. I go to the same church as maria pokluda and she sent me an email telling me about Claire. My heart is hurting for you but I am praying and sending positive thoughts to EVERYONE. As a parent to a 5 and 2 year old I can’t imagine the pain and frustration you and your wife must be going through. Just please know that my family is praying for Claire.

  24. Your story brings me to tears and I’m flooded with all the emotions I felt after my daughter had a stroke and suffered extensive brain damage. God has definitely done a miracle in our daughter’s life and we will be praying for a miracle for Claire. God is bigger than science, so hang on to the truth that with God, all things are possible.

  25. Thank you so much for the latest update. It is so encouraging to know that Claire is responding to Tiffany. I know your love for Claire will keep you strong through this process. My thoughts and prayers are with you every minute. Love, Marnie

  26. Dear Tiffany, Tyler, Autumn, Heidi, and Claire,

    Marnie told me the news and my heart sank. Your family means so much to us. Thoughts of little Claire occupy my mind as I hope and pray for the best.

    Thank you for setting up this webpage so we can read about Claire’s progress and let you know of our support. You certainly have our prayers, thoughts, and best wishes.

    Brian

  27. Thanks so much for the updates. Our prayers are with you always. We all love sweet little Claire so much, and we know your love for her will push you through this. You will be in my thoughts and prayers every second. Love, Clare

  28. I am a MOPS mom in Illinois and read about your precious daughter on the MOPS Facebook page. We will lift your family up in prayer as you continue on this journey.

  29. Tyler and Tiffany,

    Tiffany, I’m not sure if you remember me, but I’m a cousin of yours from Lorain,OH. I just wanted to tell you that I’m sorry to hear what you as parents are going through…my thoughts and prayers are with you during this time!! God is an awesome God and he hears all of our prayers!!!

  30. Your family does not know me, but like so many others I heard of your story and have been thinking of you often. I heard about your Claire on Monday and since then I have been praying day and night. Your family is on my mind throughout the day. I cannot imagine the emotions that you are going through, or how exhuasted with worry you must be but know that there are so many people praying to our Heavenly Father for your beautiful little Claire. I pray that knowing this will bring some comfort in this difficult time.

    Praying for Claire,

    Daphne

  31. I go to school with Bailey Morgan, and Ive kinda been stalking her facebook to get updates on Claire.. You are all in my family’s prayers, and we all know what its like to have everything changed in an instant, so we all wish you the best.

  32. Hi Tyler, Tiffany and girls,
    Not an hour goes by that I don’t think of you all and pray!! I find myself coming and checking the computer once an hour to see if there are any updates.
    We are praying and have sent a prayer request to everyone on our email list. They, in turn, are putting Claire on their prayer chains. God is good and we are praying for a miracle for little Claire. Doctors and nurses will then have to say it was only of the Lord……..what a testimony to them!
    Love and prayers!!
    Clifford and Kathi

  33. Tyler this is Gus alfaro the guy that gave claires first steps of cpr. Hope u guys are doing well I know we have not seeing each other since sunday.as u know we live tyler in east Texas so we hope to go back and visit u guys. May god bless u guys and watch over u guys. See ya soon.

  34. I also have never met you, but am friends with someone you know. I can’t begin to imagine what you are going through. I work in the medical field and like you, am a skeptic. However…kids are amazing creatures who have more drive to survive than anything I have ever seen. While her progress may be slow, it’s progress. You are in my thoughts and prayers.

  35. Tiffany, Tyler and family,
    We are continuing to pray for Claire. I have never met her but I know that she is a special little girl. I appreciate the updates on her condition. Trust in the Lord he works miracles. You are all always in my thoughts and prayers.

    Love,
    Carol, Mikie, David and Ashleigh Constance

  36. I know yesterday was a tough day for you guys. Tiff, when I talked to you, I could hear the weariness and heaviness in your voice. My heart hurts for you guys right now, and the weariness that I heard in your voice resonates with me.

    I was feeling very down yesterday and just overwhelmed with everything and as I was driving home from class a great song came on my ipod that really encouraged and moved me. I wanted to share the lyrics with you.

    Comfortable, don’t get comfortable
    I am gonna move this mountain

  37. I’m a friend of your Aunt Regina. We have been praying for your daughter, and have people all over Canada praying for her.
    This past December we went through a similar thing with my nephew. He was in a car accident, had brain injury and had to go through a very similar time of waiting for him to wake up. After about 10 days he did wake up, and after the first week (which can have up and downs) began to recover so quickly. Less than a month after the accident he was back in school. All the medical staff attribute his recovery to the power of God. It’s the same God we’re praying to for your Claire. He loves people, and he loves Claire. Expect miracles.

  38. Tyler, Tiffany, Autumn and Heidi, you don’t know me but I heard about Claire through Ann Maloney. I just wanted to write a short note to say you are all in my prayers at night. My heart pains knowing what you all are going through. Sounds like Claire is a fighter when it comes to struggles and obsticals. Kids are strong Keep the faith and positive attitudes and God will help bring you all through this rough time. You all are in my thoughts and prayers.

  39. I know that yesterday was a rough day for you guys. Tiff, when I talked to you I heard weariness and heaviness in your voice. My heart hurts for you and those feelings resonate with me very much.

    Yesterday I was feeling very heavy-hearted and overwhelmed with everything. As I was driving home from class I was listening to my ipod and this song came on. The lyrics really encouraged my heart, and I wanted to share them with you.

    Comfortable, don’t get comfortable
    I AM GONNA MOVE THIS MOUNTAIN
    Then I’m gonna move you in

    Yesterday, this is not yesterday
    You were standing on my shoulders
    Now you’re standing on the edge
    You were lookin’ for a sign all this time

    I am gonna show you what I mean
    I am gonna love like you’ve never seen
    You are gonna live like you used to dream
    This is your new song

    So afraid that you don’t have to be afraid
    Even if you make mistakes
    You know that I’ll remain

    You were lookin’ for a sign all this time
    If you seek you’ll find me every time

    So I am gonna show you what I mean
    I am gonna love like you’ve never seen
    You are gonna live like you used to dream
    This is your new song

    Can you feel the call of love?
    Is it moving you?
    To be a child of God? of Love?
    Is it reaching you?
    It’s everywhere, the call of love

    I just wanna show you what I mean
    I just wanna love like you’ve never seen
    Do you wanna live like you used to dream?
    Then I gotta song for you…

    It was amazing to me last night to read so many people’s responses to yesterday’s post, and people kept referring to everything as a “mountain” that we are unable to move. I feel so encouraged and firmly believe that God is gonna move this mountain!

    Love you guys, miss you.
    Bryanna

  40. We don’t know each other but I just wanted you to know that CMA all over the country are praying for you all. My name is AmySue and we live in South Dakota and we know that God is working in your families lives.
    I just wanted to share with you my favorite verse in the Bible in Isaiah 40:31, But they that wait upon the Lord shall renew their strength, they shall rise up with wings as Eagles, they shall walk and not grow weary, they shal run and not grow faint.
    God bless you all

    **AmySue

  41. Hello,
    I do not think that I have ever formally met you – I was in MOPS at IBC with you. I want you to know that if there is anything you need big or small please let me know. You need someone to go water your yard- feed your dog – seriously anything at all please let me know.

    My heart, thoughts, and prayers are with you.

    JoAnna Kuntz

  42. I belong to MOPS and my friend Cheryl Price told me about your daughter this morning. She sent me the blog and after I read it I began praying for Claire and your whole family. I’ll be praying continually for her healing and for God to give you the strength you need. God bless you all…

    Kim

  43. Tyler & Girls –

    Nothing can begin to express the unbelievable heartbreak you must be going through. Please know we are all thinking about you here at Fox and although you are a skeptic you asked for a miracle, so I’m pulling out all the stops I can. I contacted my mom at her international mission and you now have a prayer chain reaching from rural villages in South America to islands in Asia, across the U.S. and throughout Europe. If sending positive vibes to the Universe will make a difference, Clare is at the front of the line. Take care.

    Sandi, Pat, Foster & Windsor

  44. Tyler & Tiffany-I have been checking this post all week with such a heavy heart for Sweet Claire and your family. I am praying for all of you. I will be home all weekend and right downstairs if you need anything. I can be reached at 214-732-3266.
    Malisa

  45. I had posted a comment yesterday but I guess my computer freaked out before it went through. I am only an acquaintance of Tiffany’s, I was in leadership this past year in the Alpha Mops group at IBC and attended an amazing retreat with Tiffany last summer. Just like the two of you, I have a 3 1/2 year old daughter and we were at a pool party this past weekend too. We could have very easily been going through this ordeal just like you. I have another friend and her daughter was under the water in their pool when she came out the back door this past weekend and the dad was right there cleaning the pool. I know the little girl’s grandmother posted some kind words on your blog and their whole family is following Claire’s progress. There are so many people praying for you. My brother in KS who I didn’t even think knew how to pray sent me a Facebook msg to tell me he was praying for your precious little girl, he has a 3 1/2 year old granddaughter. He stated that he has prayed more in the past few days than he did all last year. 🙂 I’ve seen some of my FB friends leave comments and bible passages on your blog and I had no idea that they even took notice of your blog link I posted on my profile page. Claire’s story has made many mothers that I know rush out to sign their little ones up for swimming lessons, her story has brought people, many people, closer to Christ. Her story has so many people that y’all don’t even know praying every 30 mins of the day and night b/c they want to see her fully recover. Stay strong and know that Claire may not be exactly the way she once was, but God has spared her and kept her on this Earth for a very special purpose and just by the comments on your blog that is apparent. My husband and I are praying for you and your sweet Claire and our children continue to pray for her too. We look forward to the day that we receive a blog post from you that says you see that twinkle in Claire’s eyes, a smile on her sweet lips and you hear her say Mommy and Daddy. Please keep talking to her until that day comes! Keep the faith and keep believing that God does work miracles. Our pastor at The Village Church was diagnosed with a brain tumor in November and his latest MRI shows no sign of cancer. He’s had people all over the world praying for him, just like Claire, so we will all keep praying for your precious daughter too. Through Christ all things are possible!!!

  46. My head injury was caused by an external thump, so it is certainly different from the one Claire has experienced. So I am perhaps a bit more alert to therpaies than the average person, and I know tha I have heard that sound/noise is one of the first senses a person will register when coming out of coma. So, mother’s voice, family voices, reading her favortie story or playing her favorite music can only be positive measures as her neurons and dendrites and synapses and nerve endings and tissues repair/rework themselves.

  47. I work with Janette and she shared about Claire with us at work. I am praying for her as well. My brother in law had been in a very severe accident. While he was in the hospital, she recorded his two eldest daughters voices and brought them into have him hear his daughters playing and laughing and speaking to him. Claire can still hear you and you can speak life into her spirit and encourage her to fight and be strong and speak the Word of God over her life. declare it in faith and we will be praying along with you. God bless you

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