Thursday, June 3: Update 2

We got the MRI results and the only word I have to describe it is ‘ambiguous.’ I don’t know why this is affecting me so acutely, but this news in particular is hitting me hard. It may have been that I was hoping for too much.

The MRI revealed that there is damage to the Basal Ganglia in her brain. This area of the brain is a deep portion of the brain and disorders in this area can lead manifestations like Cerebral Palsy. The neurologist used ‘mild’ to describe the damage but it is a nuanced use of the word: while the current MRI looks mild, there is potential that the damage could still be devastating. This is where the ambiguity comes in. We were told on the first night that the extent of damage on functions could be between 0 and 100%; that appraisal remains the same.

While the doctor and neurologist who conferred on the scan have been practicing for decades, they could only describe what they were seeing as different: this is a new case to a neurologist that has seen much in 25+ years. This ‘different-ness’ doesn’t leave things open to interpretation: there’s just nothing to interpret. The MRI results are a data point that gave just confirmed that our uncertainty was warranted. Things are still very uncertain.

So where does that leave us? The only person that can answer that question is Claire. The damage to her brain is done. Nobody knows to what extent. So we are now getting ready for an exercise in ‘Show us what you can do.’ While we were wrapping up our MRI results meeting, the doctor turned off the remaining sedatives. We’ve started the process of removing whatever roadblocks she would have to directing her own recovery. No more sedation meds. No more paralytics. And as soon as she’s able, no more assisted breathing.

We’re going to be looking for progress. We don’t know how deep the injury goes so we will be anxiously waiting, praying and hoping to be shocked. Because that’s what it’s going to take.

Tiffany, Autumn, Heidi and I are missing our daughter. My heart is hurting for her and I am frustrated that I can’t fight for her. As a father I have always been aware of what I can protect her from and I have endeavored to keep those things at bay: it’s so difficult that I can’t see those things that are standing in front of her right now. It’s harder that I don’t know which obstacles she’ll be able to lift on her own and which will be permanent. I want to move those mountains for her. I can’t.

I am sorry we don’t have more news to report. The next seven days will tell us much. And as a skeptic, I’m asking for a miracle.

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86 thoughts on “Thursday, June 3: Update 2”

  1. Tiffany & Tyler,
    I’m sorry that the news wasn’t encouraging…but keep asking for & HOPING for the miracle!!!! We are praying with you and for you!
    Sarah

  2. Dear friends, I just want to think that Claire is gonna be one of those medical miracles and that she’ll overcome whatever is in her way. It’s gonna be hard and maybe slow, but I know she can make it and I’ll pray everyday for her full recovery.

  3. Hi Guys, You don’t know me. I saw your website on a friends page on Facebook. I just wanted you to know that we are saying prayers for you in New Jersey every single time I think of you. I can’t get you guys off my mind. We are Texans but have been relocated out East. We believe that God can do anything with Claire and we pray that she will be completely healed!! We will continue to pray for a miracle and believe God has his hand on Claire. We pray for your peace as well. With all of our heartfelt support, Jennifer, Monte, Larson (8 years) and Landon (5 years) Beck.

  4. Thank you for the updates and thoughts. Praying fervently for you, Tiffany, Autumn, Heidi, and of course, Claire.

  5. Oh, Tyler, how painful for you all. Many people are praying now for all of you, and especially for Claire, that fighter of a little girl.

    I’m having dinner tonight with Grandma Rae. When I return, I plan to sit down and write you briefly my story of being in a coma, with brain damage. not expected to live. It was not as severe as Claire’s may be. But what I want to tell you is what it was like to BE in that coma. Maybe that will be of some small help to you.

    In the meantime, I have passed your need for prayers to many, many people, and asked them to pass that along. I will pass this news along too. Miracles do happen. Belive that. And believe in your girl too. I understand why you miss her. But she’s in there someplace. Talk to her, tell her how much you love her, and how much faith you have in her. I know you’re doing that already. It’s so important!

    Love,
    Dodie

  6. Hi Tyler & Tiffany-
    I was made aware of Claires story from relatives of my wife, the Stott Family from Colorado Springs.
    I read your entries here and your story tugs at my heart. I just prayed for Claire and it brought tears to my eyes and a tingle to my spine. For me, I feel this sensation is a positive thing. I am calling on the angels and all the powers beyond our understanding to guide Claire safely back to you. You will all remain in my deepest prayers and thoughts as you progress down this emotional journey. Wishing you all the best.
    -Luke Dollar
    Alameda, CA

  7. God isn’t done showing what he can do. We all love you and you are all in our thoughts and prayers constantly.

  8. We are just as devastated to hear the news but we’re praying for a miracle. Claire is strong and a fighter. She’s a shining light for all of us to watch. She’ll pull through whatever God has given her to deal with. We love you and miss you.
    Love,
    Matt and Jess

  9. Tiff and Tyler,

    We have been and will continue to keep all of you in our prayers. Prayers of strength for you, as parents, and Autumn and Heidi as sisters, and prayers for healing, strength, and miracles for Claire.

  10. We have been praying non-stop for a miracle. Over and over the Lord brings Claire to mind. Hold fast.
    Mandy

  11. One of my favorite sayings which I repeat to myself in times of struggle is “Don’t tell God how big your mountain is; tell the mountain how big your GOD is”. This is what comes on my heart during my prayers for Claire and your family. Her name is on many lips and in many hearts and I am confident that God hears your cries! Some day you should ask Aunt Diane and Uncle Ed (my folks) about what happened to Andy when he was little (it involved a wrecked bicycle, a homemade ramp, and him laying unconscious in the street for an unknown amount of time) and the thousands upon thousands of people who prayed for him—people we didn’t know but who heard about it–just as is being done for your Claire — and his recovery. But that’s another story…your story is now and we are listening and sharing and praying and hoping with you, every moment. Hard as it is, remember to take time to care for yourselves, as Claire will need you at your maximum strength and health thru all of this time. Love and hugs, Cousin Ruth Ann & family

  12. Praying for the damage to be so mild that there are no effects or the effects are so mild that most people will NEVER notice. That someday someone will have to remind her that one time she had millions praying for her. And that everyone of our prayers were answered! Praying for your family to have strength, endurance, love and plenty of support for everyone during this process. God bless you all.

  13. You don’t know me, and I don’t know you. I heard of your Claire on Facebook. I can’t even begin to know your anguish, pain, and the total frustration you are going through right now. I can only lift you up in prayer and TRUST that God is moving on your little girl’s behalf. I pray that the miracle she needs is forthcoming! I pray that you, as parents, will be undergirded with strength, courage, and an unstoppable faith to continue to stay strong and fight for your little girl! I pray that God gives you wisdom in all the decisions that will have to be made regarding Claire’s care. Doctors don’t know everything, and they don’t know your little girl. Trust your instincts as parents. I pray that LOVE will see you through and that there are improvements every day, even small ones. God bless you. I will continue to pray for Claire and am looking forward to the good reports!

  14. Tyler,

    If it’s of any consolation, and if I can help at all, let me tell you my story as a father, and one with two “miracle” babies as well. While I could type forever, i am hoping this message will be brief and to the point.

    Josette, my 16 year old, is a straight “A” student. She, just yesterday, finished her sophomore year. With a heart of gold, to top the grades, she is a medical miracle. Josette was born six weeks premature. Because of the small town she was born in, the facilitiesafforded to her were nothing to sat the least. She was air evacuated to Phoenix, where her sucking chest, from breathing difficulties became a serious issue. On the third day, the IV machine punched an air embulous into her heart… She was in cardiac arrest for several minutes, with her little 5 pound body turning blue, when the doctor finally inserted a needle into her heart, and brought her back. Neurological deficits were introduced, epilepsy was introduced, and a host of other ailments were introduced as to what her future was to maybe be like. However, as the aformentioned beginning of this paragraph suggests…. She has none.

    Next is McKenna… Her mom went into labor with mckenna at 19 weeks. From there, the labor was stopped and Michelle (McKenna’s mom) was to be on bed rest for the remainder of the pregnancy. After a few weeks on bed rest, we went for an ultrasound. It was discovered that McKenna was missing her left forearm and hand. We were then directed for genetics counseling. The counselor then began to tell us about some of the things that may have happened to cause the early labor. She explained that maybe Michelle’s body was trying to rid her body of McKenna because it was damged in some sort. From there she introduced, again like Josette, that McKenna would be retarded, have a blood disease, or a the typical “host of other problems”. Finally, in that session with the counselor, she offered us an option of abortion. Being the Christian people we are, this was NOT an option. They could have ordered tests and everything else to find out, if only for our benefit, to see if we could see if anything else was to be “wrong” with our child… We declined any and all tests… This was back in January of 2002. McKenna was born, happy and healthy April 18, 2002…. with one hand =)….. Now, the same exists in McKenna as it does for Josette… She is straight “A” student with an absolute heart of gold. She is NEVER without a smile on her face and honestly, I thank God sometimes she only has one hand…. That right hand is magical in the things she does with it, and I do not, nor does her mother, step dad, or brothers cut her ANY breaks when it comes to doing things….. SOOOOOOOOOO

    I understand it’s hard… I cannot imagine the hurt you are experiencing, but I do understand the helplessness…. Doctors are only practicing medicine, they are not the miracle workers.. However, some of them are, and I pray in their name through Christ and our Heavenly Father, to help Claire become that miracle I have experienced. Without being left out, I pray the remaining part of the Holy Trinity, the Holy Spirit, will work miracles inside and out of Claires young body.

    I hope this helps in some way and that you have the opportunity to read this, as I am sure you more pressing things on your mind.

    My love for you and and all of your family in this desperate time, but more love and prayers for your young Claire, her doctors, and God our Father,

    Camron Ryan

    ps-please forgive any spulling errurs, as my comupter likes to mispull things from time two time

  15. Tyler and Tiffany…. I don’t even know where to begin… I have been praying and praying sense i got the Text from Bryanna and spoke to your Mom…… my heart is so there with you….

    But I know your Lineage and I know Claire’s.. and trust me when I tell you we are born from Fighters!!! We were born from people that the Doctors told them one thing and told us “never seen that before” and Their bodies, minds and spirits were so strong we/they overcame!!!..

    God has worked many miracles in this family.. and I know he will continue to do so… !!!

    Claire has so much Fight and such a strong spirit. So many people are praying and rooting for her… and continue too…!!!!

    I so love you all… Just reading this blog proves the kind of Person (s) (Tiffany too) you have grown up to be.. and I don’t think any of us could be prouder of you… your Parents have done GOOD!!!! Keep looking towards God and he will always lead you in the right direction — and NEVER give up on those Miracles large or small…. there are to many of us that would not be here if it wasn’t for them!!!

    Love you all,
    Aunt Janette

  16. I am so very sorry for all that you are going through. My heart is with you all and I will continue to send postitive hopes your way. Your daughter seems to be strong and a fighter so this will play greatly in her favor. I will light a candle tonight for you all, and thank you very much for sharing her progress with us. I know what a personal and difficult struggle this is. Much love and hope…Michelle

  17. Those news are sure hard to hear but miracle do happen. today after I received your messagen I talked to my sister in Brazil and a minute ago she send me that prayer ” Come Gracious Spirit, Heavenly Dove,
    With light and comfort from above.
    Be Thou our Guardian, Thou our Guide,
    Stay close by every child’s side. Amen!”
    with love joana and family

  18. We don’t know each other, I read of your blog on a friend’s facebook site. But I want you to know I am praying for your sweet Claire. I know what it’s like to watch your baby hooked up to every machine, praying to God for a miracle. We got our miracle just this last November and we’re believing for yours, too.

  19. I learned of sweet Claire’s story last night through a Facebook post and have not been able to stop thinking about her since. I’ve cried reading your posts and my heart aches for your precious family. During my prayer time today, I was reminded of a scripture a friend shared with me a few years ago. Romans 8:26 & 27 read, “In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express. And he who searches our hearts knows the mind of the Spirit, because the Spirit intercedes for the saints in accordance with God’s will.” It must be extremely difficult to find words to express the constant stream of thoughts, questions, and fears flowing through your mind. But rest assured that God knows our emotions and reads the sorrow, pain, and hope that can be found in our hearts. I will continue to share Claire’s story as well as lift each of you up in prayer during these moments encompassed with groans and aches. May you find comfort in God’s ability to read our hearts.

    Erin Uhlaender

  20. II Corinthians 4:8-9
    We are hard pressed on every side, but not crushed; perplexed, but not abandoned; struck down, but not destroyed.

    Praying that you are renewed and lifted up by His Holy Spirit. That you feel God Spirit surrounding you.
    In Christ Jesus, Pearl

  21. Ouch. Trying not to be discouraged. God is still in all of this. It is like He is asking us if we will still trust Him. I choose continue to trust. He is still good even with the prognosis of brain damage.
    We will get though this as a family no matter what happens. I continue to pray for a miracle.
    I love you both immensely.
    Michelle

  22. We are hoping and praying for the miracle. Coming from a nurse that understands and a skeptic, be strong and hang in there. It is so hard but God is great and we will get a miracle in Claire…regardless of how, it will just happen.

  23. Dear Martin Family,
    Hold to a Miracle, my family, friends and relatives are praying for the full recovery of Claire. Look at my Pablo, I BELIEVE in miracles everytime I see him. Never give up hope. Doctors just try to read based in repetition of cases, but you and I know your girl is just one and only, so have faith on her, in God, in the power of your thoughts, and in the people who are praying for you. Sending you all our love
    Diego, Pablo, Axel and Gaby De la Mora

  24. As we all continue to pray for healing, strength and peace. Remember that God blessed you with Claire for a reason. He will continue to help as all of you overcome what you feel or experience as the most difficult challenges arise. With your faith, he will see you through this.

  25. GOD is the great physician! Keep looking up and know that God is right beside us in each and every step of all our journeys.My heart breaks for you and your family. I Pray God will heal this sweet beautiful Claire… Prayers are being lifted up…

  26. We are still praying and will not stop. Those prayers will be heard and God will stand beside you and hold you up as things progress. Take care of yourselves as you care for Claire.

    Blessings,
    Kristin Haney

  27. Continuing to pray and trust in God. Hope is not lost, if there are challenges than you will face them, your love for God and for Claire will get you through this. I love you all!

  28. Hi,

    You don’t know me, but I’m a FB friend of Kasee Pedrini, and she asked for prayers for your beautiful Claire. I want you to know I’m am praying… on my knees praying… and asking God for the miracle of total healing. Claire is absolutely beautiful and it seems that she is quite a fighter! We will continue to pray, and I’ll check your blog daily. Blessings to your family,
    Criss, Bob, Chad (16), and Kevin (14)

  29. We will continue to pray that God will perform a miracle here! We also pray that He will give you both the strength to get through this. I can’t even begin to imagine how difficult this is for you. I hope you feel Jesus’s sweet arms around you right now and find comfort that people around the country are praying for you all right now and that God hears every word.

    In Him,
    Geri

  30. Tyler and Tiffany,
    I saw this post on my Aunt Ruthie’s Facebook. I fought back tears reading your blog. I have a 5 yr old little boy and can’t begin to imagine what y’all are facing. Please know that I am asking God for a full recovery. For He is the great physician. Please keep us posted.

    In Christ’s Love,
    Laine, Rodney and Luke

  31. The other night as I looked down on Claire’s lovely face my usual supernatural inner calm and peace began to leave me as I started to reflect on how much i miss this little girl and want to have her back with us. I asked the Lord all my questions, where is she? Will we get her back as she was?etc. I clearly heard the Lord say two things,”Trust Me” and “Do not underestimate Me”

  32. I am friends with Geri Wiley and received an email regarding prayer for Claire. I just read your blog and though I don’t know you nor do I understand your circumstances, I want you to know that I am praying to our Lord and Savior who does know you and does know and IS in control…even when we can’t see it. We are praying for a miracle with you.

  33. Amen to all these wonderful and encouraging messages . . . keep the faith . . . God works everything for our good . . . with God, suffering is never the final outcome . . . hold on. You are wholly and dearly loved.

  34. A friend just sent me your story. Our children both survived drowning. It might not seem like it to you but Claire sounds like she is repsonding very well! That is not to say you don’t have a climb ahead of you but you have some very good indicators of things heading in the right direction.

    There is a support group with much valuable information http://groups.yahoo.com/group/parentsofneardrowns/

    keep praying for your miracle! God is good!

    Many prayers for you all,
    Sabine Summerville

  35. Dear Tiffany, Tyler, Autum and Heidi,
    Just crawl up on the lap of God and tell Him all your fears. He is big enough to hold you all, check out his size . Is. 66:1 “Heaven is My throne and the earth is My footstool” That is one mighty long leg. There is room and He wants to hear from you. Be sure to take Claire on His lap as well. That is the only place you will find a peace that passes understanding. It will not make anything easier but you will be able to have peace in your heart and think things through better. Remember, Claire is His child and He cares for her even more then you so…He died for her. Our pray is that you will feel God holding you all and that Claire will improve fast.
    We love you all and pray for you lots,
    Theo and Ruth

  36. Dear Martin family,
    Thanks for the updates! Our hearts break and tears flow for your pain. We pray that God will grant you and your family strength to get through this time and praying for a miracle for Claire. May you feel Gods arms just hold you tightly during this trying time.

  37. My parents are neighbors of Claire’s great grandparents, Don and Joann Simons here in South Dakota. We have been praying for all of you and little Claire like crazy. I am also the prayer coordinator for my local Christian Motorcyclists Association, and Prayer Requests for Claire have been sent to every CMA chapter in the country. That reaches over 100,000 people who will pray for her and for you as you all fight this battle. Just know that God is a God of healing and Miracles. When my daughter was born at 28 weeks, weighing 1 pound 6 ounces and had been without a heartbeat for 15 minutes, they told me she would be born dead. I told them “God can do ANYTHING HE wants to!” And He did! My daughter is 13 now and wonderfully, perfectly made in every way! I am praying and believing that Claire will have a miracle of healing. It may take time and work, but you will have your beautiful Claire back!
    In Him,
    Susan Footh

  38. Martin Family,
    I will keep praying for her to be good. There is a reason she is still with you all, God is giving her another chance at impressing with world with her presence. Don’t give your hopes up. As a worker with children with disabilities have seen the impossible. Please keep us updated if possible. It has made my day everytime I hear some news about her.

    Sincerely,
    Veronica Montes

  39. 1 Peter 5:7 Casting all your care upon HIM for He Cares for you!
    Is 53:5 b And by HIS stripes Claire is Healed!
    Jer 29:11-13 For I know the thoughts that I think toward you, says the Lord, thoughts of peace and not of evil, to give you (Claire) a future and a hope. Then you will call upon Me and go and pray to Me , and I will listen to you. And you will seek Me and find Me, when you search for Me with all your heart!
    Psalm 107:20 He sent His word and healed them (Claire)!!

  40. In the times when it’s hard for you to keep hoping and believing that the best can happen, we hope and believe for you. That’s what family does. I love you.

  41. Please know that many people are lifting Claire up in prayer. I was told about her on facebook and many others have joined in praying on her behalf because of that. We are all connected and our connected prayer is strong. I believe that the doctors seeing something on the MRI that they have never seen before is the miracle of healing unfolding before their very eyes. I will continue to pray for Claire daily as will many others you will never meet. Please find comfort in the embrace of your family and friends and the true concern of strangers.

  42. Saw your blog on Gretchen’s facebook page. Prayed for you this afternoon. I don’t know you, but I care about your pain and Claire. I will not stop praying for you all.

  43. Dear Tyler and Tiffany,

    Stay brave and trusting our Lord Jesus. Joining you with an army of prayer warriors from Southeast Christian Church in Parker Colorado. We are covering each of you and all the caregivers in prayer and calling on the power that resurrected Jesus to make your little girl whole.

    These updates are so well done we all feel a part of little Claire’s life right now. Hoping you all feel the prayers and support from many directions.

    Peace be with you.

  44. I heard of your tradgedy through my friends FB page. Keep your hope & faith alive and remember that miracles do happen. Claire is wrapped in love and prayer every moment of every day. My heart goes out to you.

  45. We are holding you all up in prayer! Sweet baby Claire is being prayed for by so many – she is blessed. We will pray for a miracle. God is so good – he loves you all and is right there with you too. Hold tight and be strong – talk to Claire, sing to her – she hears you! My love goes out to you all!

    Traci Green

  46. You don’t know me, but I have been praying from a friend’s post. I went through the same with an adopted child- and I can tell you first hand- God’s grace is beyond our hopes and dreams- he can do all things, heal all things, and is simply waiting for a chance to show his amazing grace and power. We will continue to pray for your daughter- that God has his hand on you all, and will use this to show our world what he can do. His power is beyond what even doctors can understand, and I will pray that you experience the day- soon- when a doctor tells you- I simply can not understand this- she is fine, and you in turn can tell him- God has healed her. Until then, you are all in our prayers- Becca

  47. Keep your faith! God is a miracle worker! You keep praying for that miracle. I will be praying for a miracle too! God is a great healer!! There is so much power in prayer!

  48. Tyler, Tiffany, Autumn, Heidi, and Claire,

    Here, along with all my prayers that continue to go out to you, along with all those from people who I’ve sent emails to asking for prayers, is my coma story.

    I know, from experience, how much all these prayers matter. In 1997, when I was 52, I was sort of where Claire is, from abdominal surgery that didn’t go as expected. The surgeons nicked my spleen, didn’t notice, and stitched me up. 48 hrs. later, I was bleeding out internally when someone noticed my bloated belly, and I was wheeled back into surgery. I’d lost so much blood that I didn’t get enough blood to my brain, and I needed 20+ transfusions. It was a brain injury, though for a different reason. I was in a coma, and I don’t remember anything for two months, starting some weeks before the surgery. When my memory began to return, it was very spotty for a long time.

    I went through the agitation Claire is experiencing; apparently it was quite severe. Every time I began to come out of the coma, they put me back in it with heavy sedation, maybe even paralyzing drugs, and I was in restraints the whole three and a half weeks before they decided it was safe to bring me out of it. My medical records tell me nothing; I know about it from two sources. One is a life-long friend who “just happened” to live in the city in FL where I had my surgery—there are no coincidences when people help us in these times of need. She was listed as next of kin, was there almost daily, and kept a log of what happened. The other source of “knowledge” is that the drug they gave me acted as a hallucinogen, and I remember some of the hallucinations. I remember friends coming and talking to me; that was a great comfort even though I don’t remember what they said, and because of the vent I couldn’t talk to them. I also remember my brother, Hank, and his son Deke, your mom’s cousin, who live in Seattle, being there. They asked what the oxymeter was. I tried to tell them but because of the vent, I couldn’t. Two years later, Hank asked if I’d known he was there, and because of this hallucination I was able to tell him I did. It meant a lot to him. So those hallucinations were extremely comforting. As were all the efforts of people to talk to me, even if the content didn’t last in my memory. The fact that people who loved me were there, and talking to me, was crucial. That’s why I say to keep talking to her. Read to her, from books she loves, from the Psalms or other Bible stories she loves. Tell her you miss her, and what’s going on at home. Just keep the conversation going, however one-sided it feels. She needs the stimulation, and she needs your voices, and she needs the love they convey. You don’t know what’s getting through—probably more than you think.

    The other thing I want to say about the prayers from all over is to tell her that. When I finally came a little bit out of the fog, my friend told me that my church, her church, Grandma Joann’s prayer group, Ruthie’s prayer group, and Grandpa and Grandma Rae’s prayer chain were all praying for me—there were probably more I never knew about or have forgotten. That meant a great deal. I was, to be honest, way too tired and weak to pray for myself. When I visited your grandparents in Spearfish a couple of years later, I was able to attend Grandma Joann’s prayer group and meet the women, pray with them, and thank them for what they’d done for me. There were lots of tears, including mine.

    Did I end up with brain damage? Yes. Physical damage too; I’ve been on long term disability ever since. I had to have additional surgeries to repair some of the damage, and my health never fully recovered. I wish I’d been able to return to my work as a minister; I miss it. But I am very grateful to God to be alive. My brain damage would keep me from working even if I had no physical damage. I lost virtually all ability to do arithmetic and mathematics, and learning new computer stuff is very hard (I spent 15 years in the computer field). I need help to balance my checkbook, and preparing my taxes for the accountant is a nightmare. Worse, I’ve lost what the neuropsychologist calls “umbrella intelligence.” Basically it means I can’t organize myself or multitask. I was, fortunately, almost as smart as your Grandma Joann, or I’d be in real trouble! But I’d never be able to keep myself organized in the job of a minister, where you need to be able to jump from one interruption to another. But I function, with some help, and I’m very glad to be alive.

    As someone said, everyone’s coma is different. Everyone’s brain injury is different. This is just MY coma story. But it’s a coma from the inside. And I came through it. I don’t think I was as much of a fighter as your Claire is. Bless her, and bless you all for loving her so much. She, and you, have not left my heart and mind and soul for one minute since I got the word Sunday night of this tragedy. And they won’t.

    I was telling someone in the hall of the retirement home where Grandma Rae and I live about the MRI and your discouragement, when a man I don’t know well overheard, and stopped to offer advice. A retired doctor, he said, “Have they considered hypobaric (I think that’s the word) oxygen?” Then he apologized for sticking his nose in, but made me promise to pass the question along. So I’m doing that too. Doctors give advice, when the rest of us offer prayers.

    I meant this to be a short note; it turned out to be very long. Please take it in the spirit intended—I care so much about that little girl I’ve never met. I care about your whole family. We’re family, after all! Take care, and good night.

    Dodie

    1. Dodie:

      Your story is beautiful and touches us deeply. Both Tiffany and I read it together. We have no more words to describe what it means to us, but please know it means a lot.

      Your eavesdropping doctor (who need not apologize) is the second person to mention the hypobaric oxygen. Another couple here in Frisco, TX had a near-drowning with their son and used hypobaric therapy. I’m going to ask the doctor about it today.

      Thank you again.

  49. Dear Tyler, Tiffany, Autumn, Heidi, and sweet little Claire,
    My dear friends, I have thought of very little else since learning about what happened to Clare. She is such a special little girl and certainly a brave one. It was just last Friday that Helen(6) and I hugged Claire, Heidi, and Tiffany goodbye before we left for our family vacation. I cherish that and look forward to seeing you again very soon. Thank you so much for creating this blog and sharing Claire’s progress with all of us. I want you to know how much we love you and cherish your family and your friendship. I will pray for her tirelessly that she won’t be afraid and that she’ll keep fighting and that God will soothe her and all of you. Please let me know if I can help in any way at all. Love, Marnie

  50. Tyler, thanks for being “real” with what you are going through. For me, I think it’s important to get that out. Any parent can understand and feel your pain…and I am heart broken for you.

    As I’ve read all these comments from people who have been through similar situations it just reminds me how Big God is, and he is in control.

    We continue to think and pray for your family constantly.

  51. i dont know you at all, but never ever stop believing in miracles, they really do happen with faith in God. Your daughter is in my prayers. i will follow your blog daily, and god bless you and your family. And fight Claire, fight. we are cheering from the sidelines little lady.

  52. I understand a Daddy’s heart, wanting to come in and fix everything. But when it comes to the “moving of mountains business”, that would be our Abba Fathers job. He can do that and more!!! Still praying…

  53. Prayer constantly for Claire and her family, that awaits the miracle of the future. God’s plan is going to be a miracle one way or another, I pray the miracle will stand before you and embrace you all in her arms. When it’s quiet… listen, for God is whispering to us, as he has been whispering to Claire in this time.

  54. Tyler, Tiffany- I can only imagine the frustration and pain you’re feeling right now. Although you may not be able to move the mountains for her, what counts is that you’re there to help her move them herself. God gave you guys such tremendous love in your hearts that you and Claire will prevail, no matter the outcome- she’s still just Claire. The one that we all love… We’re still praying for you guys everyday. Love you…

    Erin

  55. Hey guys,
    I want to take the time to thank you for posting the updates. I think of your little girls daily…. not just Claire but autumn as well…. the pain on her face and the feeling of helplessness will never leave me. I pray for your family daily and can not wait to read the newest post. as a teacher of special education I have seen what the lord can do…. keep faith.. thanks for the post.
    Kristen

  56. Precious Friends…

    Oh, like so many our hearts go out to you and your family. We ache along beside you all. Prayers for strength, wisdom, a real hope and a real peace. “In the day I cried out to you, you answered me and made me bold with strength in my soul!” Ps. 138:3

    Dear Sweet Claire, Keep going darling girl. Be brave, little woman! Much peace to your heart and mind in these times, a peace that we can’t even fathom as adults. You are loved by many, Claire.

    Thanks for including us all in on this journey, Tyler and Tiffany….

    Much love,

    Cory

  57. Be reminded-our God is in the miracle business! NOTHING is impossible with Him. We will continue to pray for Claire to be healed and for all of you as you wait. Continue to lean on HIM!

  58. Got your blog as a prayer request from a friend at your church. I am in Rochester, MN. I want you to know that there are people here standing by your side and praying for you. I can’t imagine what you are all going through, but God can and will move the mountains that Claire and all of you are facing – the ones you can see and cannot see. I’m believing for precious Claire to be in your arms, laughing and playing in no time. Blessings to all of you.

  59. I have asked the Lord to be with you all, for healing, comfort, and growth. Miracles are real and all things are possible through the Lord. May you all find joy and peace in everything you see!

  60. My thoughts and prayers haven’t stopped since I heard about your story. I don’t know you, but know something like this could happen to any of us at any time. God is holding little Claire in his hands and healing her every second. Keep praying and believing and know that there’s so many people out there who are doing the same.
    Love to your family,
    Stephanie

  61. The things which are impossible with men are possible with God. Praying for complete healing of sweet little Claire.

  62. Your words bring back a flood of memories. I remember when the future looked like an endless, foggy, pit-filled valley of unknowns. But it is not unknown to God, and He will steer you through it. I’m certain of this.

    When doctors took Jacob off the paralyzing drugs, we held our breath and waited. But nothing happened. Nothing. He was in a deep coma and he only got worse before he got better. I pray Claire will respond quickly and dramatically, but if she doesn’t, don’t despair. I wanted an instant miracle, but God chose to walk us through a faith journey and draw thousands of people into His purposes instead. I would be lying if I said it was easy or fun, but I’d also be lying if I said that God failed to sustain us in any way. He is faithful. He is working. Every word He has spoken concerning your dear Claire will come to pass, and not one will fail.

    How well I understand the helplessly of knowing you can’t control this or protect your child. Praying you’ll have the grace to lean into Christ and let Him carry you every step of the way.

    I’m praying. And I’m available.
    Peace of Christ to you. Jeanne

  63. Hi, Tyler & Tiffany,
    I’m a co-worker of Grandpa Ed’s.
    Thank you for your authenticity and vulnerability in your posts, and for allowing us to hold you up in prayer. Continue to expect miracles. Even where you are right now is a miracle. A day, or even a minute at a time, your story is still unfolding. Your sweet Claire is exactly where she should be – resting in God’s strong and gentle hand. She is in our prayers, as well as your entire family.

  64. GOD lead the Isrealites in the desert as a fog, and where the fog went they followed. GOD Leaves us in the place where he needs us to be. On our knees. Totally relient on HIM. I can see that GOD is involved here and the ambiguety of it all is just like him. Stay on your knees in prayer and dependency. Much is accomplished by the prayers of the rightious.
    I will continue to pray for Claire.

  65. Like many other’s. You don’t know me or I you. I heard about your tragedy through a friend on Facebook. I have been praying and many people from my church have been as well, for your beautiful little Claire. Of course none of us know what you are going through, and as a parent my heart aches for you. Thank you for being so candid in your updates. Just know that while you may feel alone on this journey, you are not! There are so many people praying for Claire and your family. I KNOW Jesus. I know He will meet you right where you are, and help you through this every step of the way!!

  66. My heart hurts just thinking what you both are going through… My thoughts will be with you along this long journey. I have seen and experienced first hand the most amazing miracles in my life with friends and family who were in what most (including all of their doctors) considered hopeless fights. Thanks to fate and the stong belief and relentless support of their family network they overcame brutal car accidents and generalized cancer, when no one gave them any hope…. Claire will be the next miracle.. I know it

  67. Our God is a God of miracles, I am not just hoping for a miracle for your little girl, I am claiming it for her!!! I stand in faith that God will be glorified through her and that His promises of healing will be proven!

    Is 53:5, But he was pierced for our transgressions, he was crushed for our iniquities; the punishment that brought us peace was upon him, and by his wounds we are healed.

    Mt 8:16, When evening came, many who were demon-possessed were brought to him, and he drove out the spirits with a word and healed all the sick.

    Mt 9:22, Jesus turned and saw her. “Take heart, daughter,” he said, “your faith has healed you.” And the woman was healed from that moment.

    1 Pet 2:24, He himself bore our sins in his body on the tree, so that we might die to sins and live for righteousness; by his wounds you have been healed.

  68. You do not know me, but your family and your sweet baby girl have been on my heart ever since I heard the news. I have been praying for you all and anxiously awaiting updates of what I hope and pray will be a miracle for your precious one. As a mother of 3, I can’t even imagine what you are going through, but I pray God gives you the strength and peace to sustain you during this difficult time.

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