Sunday, June 6: Update

Barring a major change, this will be today’s only update.

We have had little progress today from Claire instead focusing on getting closer to the time when we can extubate from the ventillator. Claire has also started to go through more withdrawals as we back down on the pain and sedative drips. Doctors have started her on methadone and adavan to compensate for the withdrawal symptoms. It’s hard to watch.

Today’s nurse indicated that we shouldn’t expect to move off the ventillator until tomorrow: the staff doesn’t want to make a major change this weekend.

Autumn and Heidi are back at the hospital and were happy to see the Dendys today. The Dendys are great with the girls and good friends and Texas family. The girls are going to get out of the hospital and play at the Dendys’ house today. It will be good for them.

I just got back in the room with Claire and Tiffany. I’m watching Tiffany brush her hair and put small barrettes in her hair. Before Tiffany started brushing her hair, Claire’s eyes were open and staring. As soon as Tiffany started brushing, Claire’s heart rate moderated and her eyes began to drop. We mark this as the first time Claire has ever been put to sleep by brushing her hair.

The wait continues. Thank you for waiting with us.

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49 thoughts on “Sunday, June 6: Update”

  1. I miss you guys today. I know it’s been hard to watch sweet Claire so tense and in pain. I’m so sorry. I love you, and I’m glad to hear that the girls are getting another playdate this afternoon. They are so sweet. We’ll call later tonight to check in.

  2. We have never met, but I have heard your precious daughter’s story and have begun to pray for her and the entire family. May he continue to bring your strength, love, endurance, faith, and blessings as you embark on one of your toughest journeys. In His name

  3. A few people at church asked about Claire today. I was so encouraged knowing that people saw and responded with prayer when i posted the request last week on FB. Again, we don’t know each other, but just the same God knows you all and Claire, and HE hears our prayers. Find some comfort in knowing MANY are lifting you ALL up in Prayer to Jesus!

  4. Tiffany & Tyler,

    We continue to think and pray for you constantly. Sadly we know all too well where you are at. We were there (in Medical City NICU years ago with our newborn son) and although the circumstances are different I know the anguish and pain you are going through. It is a horrible place to be. I pray that God will give you the peace that he gave us and wisdom to navigate the journey and I pray that he will heal Claire like only he can do!

    Hugs and prayers!
    Ruth

  5. Tyler & Tiffany,

    I am thinking of you and praying for Claire. I have a lot of friends and family that are praying for her as well. I pray for strength and patience for both of you as go through each day.

    Regina Rountree (Fox Sports)

  6. Standing in the gap with you appealing to Jesus at the alter of incense before the Father. He is Claire’s advocate and the holy spirit will lay these prayers before him with holy love and wisdom.

    We are here to hold up your arms during this tired time dear friends. Bless you and may the Lord refresh your minds, hearts, strength and spirit.

    There will be a big service tonight at SECC in Parker Colorado. Your daughter will be raised up among the masses. Be encouraged. You have been trusted with much.

    Peace and love, Krista

  7. Let’s just hope that tomorrow when the ventilator is off, she’s going to be fine. I’m glad Autumn and Heidi could have a little bit of a distraction. You are in our daily prayers and thoughts. We’ll be waiting for any news 🙂

  8. God bless you and share His bountiful mercy with you. What a great dad you are. I follow your posts with great expectancy, and pray that the God of our Fathers will continue to be with you…love and blessings…

  9. Dear Claire and family,
    Our family goes to church with your grandma’s friend and she asked us to pray for you. Our whole church is praying for you! God promises that He loves you and He cares for you. He has even counted every hair on your head. You are precious to him, sweet girl! Trust that He has the best plan for you, even when it is hard for us to believe. He loves you dearly! You and your family are in our prayers each day. My third-grade students are praying, too.

  10. We don’t know each other – in fact we live in MN but I saw your story because someone shared with MOPS Intl. and asked for prayer so I just wanted you to know that I am praying for you and all your girls and will continue to do so in the coming days and weeks. I appreciate the updates as that helps remind me to continue praying. God continue to bless you and keep you in the coming days and weeks…

  11. Tiffany, Tyler, Autumn and Heidi,
    I wish my English was good enough to say a lot of things to comfort you a bit. But instead saying words I am praying and having positives thoughts about Claire.
    Thanks a lot for keeping us update.
    Take Care

    1. Bia,
      I know you so well. You don’t need the words. I saw your face when you visited, and I felt your hug. You are wonderful my sweet, caring friend. Thankyou for coming and posting.
      Much love,
      Tiffany

  12. Tyler,

    Isn’t methadone what they give to people hooked on narcotics? What kind of medicine was she on that it requires this kind of a drug? Just curious. Poor little Claire. Sorry you guys are struggling.

    I thought of you and Tiff during worship today and got so choked up that I could not sing.
    Love you both.
    Michelle

  13. I know it is frustratingnot knowing the answer to how things are going to turn out. It sucks when we have to be patient. During church today we read this scripture and I couldn’t hold back the tears:
    For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11.
    I continue to think about you guys and pray constantly. It hurts my heart that you all have to go through this. I love you all so much!

  14. Jesus looked at them and said, “With man this is impossible, but with God all things are possible.” Matthew19:27

    Claire is in good hands! With her doctors and with God. So is your family. When you feel alone, remember, you aren’t! I am praying for you all and praying for God to give you all strength and guidance in the many decisions to be made.

    I wish I could meet Claire – you never know. Maybe one day!

    My Love – Traci

  15. Dear Tyler & Tiffany,
    Continuing to pray for strength and patience for you as you walk through this trying time. Though I am sure you have many friends and possibly some family in Dallas, I am in San Antonio, and since I’m still teaching and have a few months off, I would happily come up there to help in any way that I can. Please let me know. My small group is praying for Claire’s healing. Thank you for updating the blog regularly.

  16. Hi There.

    I was so very saddened to hear the news of your daughter’s accident. Your blog was passed onto me from my Aunt who works with Eddika Barron. From what I understand her sister was at the party as well. My aunt passed your blog onto me beacuse she felt I may be able to help you. Two and a half years ago we went through a very similar situation with our daughter Hanna with the exception that her hypoxic Brain Injury stemmed from a pinched cord at her birth. We have lots of insight we can provide about healing a brain injured child as well as yourselves. This is very important since a traumatic event such as this effects not only Claire but the entire immediate family. I understand you are in the thick of it right now, but when you are ready and/or have questions about decisions you will be making for Claire, I wanted you to know I am available to you.
    In the menatime, I have read her updates and can see some very promising signs. The tears, the hand raising to grab at her neck, these are all great things. Her adrenal system is running full tilt from the shock of her event. As much as you can, massage her. Soothing touch from family will help calm her system. Play her soothing music, read to her. The more you can give her brain something to latch onto and calm her the better. Listen to your intuition/ instict about big decisions like a g-button. We brought Hanna home on a nasal canula when a g-button was suggested and it took a few weeks but she was able to be feed orally after a couple of months, we were glad we did it that way. I know you have yet to determine what may truly be neccessary, every situation like this is so unique but please remember to listen to your heart. The Doctors have their rendition of how things should go but your ideas as parents can be equally as powerful.

    We send you much love, and prayers and have set an intention for Claire and your family to heal from this life event.

    You have my e-mail, when your ready, I can also give my cell., I’m in Dallas.

    God Bless you all,
    Christina Simko

  17. Dear Tyler and Tiffany,

    i am Sister Debra, one of the Sacred Heart Sisters. Your grandparents Pat and Jim, called to ask all the Sister to pray. We are old time friends. Pat, Jim and family use to come up to our family Camp. and Pat, still come up to Big Bear to help in the kitchen, for Girl’s camp.

    I am grateful that Jim called. We are all praying for all of you.
    We stand watch with you and pray for .

    Please count on our prayerful support and love.

    In His Most Sacred Heart, Sister Debra and Sisters

  18. Candace is my niece, and she texted me last week to pray. My thoughts and prayers are with you and your family. It looks like God is working day by day in Claire’s body. He is a miracle-working God!

  19. Tyler & Tiffany,
    You don’t know me..I am friends with your mom in Colorado Springs. I just wanted to thank you for blogging this experience. It is probably the last priority right now, but it gives us tools to know how to pray! That being said, your sweet Claire is in my prayers!! It is so hard for us to imagine that Father loves our children more than we do, but He does!! Many, many prayers and blessings to you~

    Tami Mount

  20. Tyler and Tiffany, I am honestly not sure what to say or how to encourage you. I have no idea what you are going through, but please know that I am praying for your family and especially for little Claire. My youngest just turned 4 and many times when I look at her throughout the day I think of Claire and take that as another opportunity to pray for her.
    Thinking of you often,
    Amy Cody

  21. Tyler and Tiffany,
    I have posted here before but I know you don’t know me by name. I have been a volunteer in the Comfort Zone and had Claire in class when she was 2. Also, my son Tyler is 3 and in Claire’s class at IBC on Sunday nights.
    Tonight during service when we sang How Great is our God I had you on my heart and in my prayers. I am praying everday for Claire’s body and mind and your hearts, spirits and minds as you are on this journey with her.
    MUCH love,
    Keeley

  22. I’m one of the Alpha MOPS moms and will continue to pray for sweet Clarie and your family. I’ve also posted your info to my Facebook page so that my community can join with yours in prayer. Your updates have been amazing to read. You guys are incredibly strong. May you feel peace and assurance in the palm of His hand.

  23. We are CMA’ers. Mark is road captain for the Sturgis Group. Our hearts went immediately out to the family and we have been praying for miraculous recovery with no side affects. God’s Hand is upon this child!! We are believing for complete healing.

  24. My eyes fill with tears as I read these messages of love from the individuals that stand in solidarity next to your family, Tyler and Tiff. We wait with you.

    “Wait for the Lord. Be strong and take heart and wait for the Lord.” Psalm 27:14

  25. We continue to pray for you here, even if we’ve never met. Claire is showing so many positive signs. Our daughter suffered severe brain damage and is a miracle today. I remember the nurses telling us that she was showing so many good signs when she was only moving her feet and arms a little bit and trying to take her ventilator out too. So be encouraged, we will pray for a miracle with Claire also, that God would heal and restore her.

  26. Tyler and Tiffany,

    We are friends of Esther and Gordon. Our tears and prayers are with you and your family. We are praying for a miracle! God is able. Our son was healed of internal bleeding (unknown cause) when he was about six months old. No doctor or specialist could tell us what was going on, but the Great Physician reached out His hand. We pray that you and your family are held in the hollow of His hand as you face each day and that Jehova Rapha, the Lord that Heals, would be with Claire. Our family and friends are joining us in our prayers for you!

    David, Beth, Asher, and Azariah

  27. Hello,
    My name is Beth Hartman. I do not know your family but learned of your plight from another family that has been praying for our son. I do know your pain and will pray for your precious Claire for healing and for each of you for strength and courage. Be assured, God is in this with you, He will not leave your or forsake you. Right this moment He has you both in the palm of his hand and is holding your sweet Claire in the palm of his hand. He is comforting her and loving her while her body begins the work of healing itself. I know it feels bleak at times, but hang onto this…you DO have something to work with. Claire’s survival was no accident and SHE WILL CONTINUE TO RECOVER MINUTE BY MINUTE. I am so glad you have started to journal your feelings and prayer requests. It is a great tool to use for your own encouragement, as you go through this recovery you will see such progress and all the big and tiny steps she will make. Jeremiah 29:11,
    For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.
    My son, JD, was 11 when he suffered a near drown in our family pool. OU weekend, October 11, 2008, around 5 pm he jumped into the hottub, knocked the wind out of himself and aspirated pool water. He too was with a pulse when EMS arrived. The cooling blanket therapy is really good for preserving brain function. Praise God the hospital you went to uses this technique. JD’s lungs were very sick and the oscillating vent you describe brought back chills. I remember how loud it was too. Sounds like you are right on track to come off the vent soon. You will be so happy to see her mouth and not that tube. I remember thinking his mouth was the most beautiful thing I’d ever seen once that bug tube was out of the way. We live in Austin and were at Dell Children’s Medical Center for four weeks (2 weeks in the PICU and 2 weeks in IMCU). JD and I then went to Our Children’s House at Baylor, in Dallas, for intensive rehab. We are now 18 months post accident and continue to see huge recovery. My heart aches for you as I read what you describe you are going through. Brushing Claire’s hair, and her calming down and falling asleep, that is a great sign! She is in there! And she will keep healing and fighting to get better. You are right, the kindness of complete strangers is what strikes you. You can totally feel the love of Christ as the body of Christ comes all around you in ways you would have never imagined. Lean into Him and let others love on you, it will bless them as much as it blesses you.
    JD is our oldest, now 13 and he has 3 younger sisters, ages 11, 9, and 4. His youngest sister, (Clare also) was 2 at the time of the accident and witnessed the entire near drowning. She was in the hottub when JD jumped in.
    Please know I will pray for your strength and Claires also. Some of the best advice I received was to be mindful of what is said in the room with Claire (doctors, etc. sometimes they forget the patient is listening too). Even is she is not talking right this moment she can hear everything that is going on. I try to remind myself, ‘you are what you think you are’
    Please reach out to my husband John or me for anything. I know it is crazy insane right now, but when you need us we are here. We are both on facebook and JD has a caringbridge page also, http://www.caringbridge.org/visit/jdhartman my cell number is 512-394-9894, and my email is jbhartman@austin.rr.com .
    God bless you, God is always in the miracle business
    Beth Hartman

  28. Thank you so much for letting us enjoy you and the girls today. It was so good to see all of you! We love y’all and are constantly thinking about y’all and praying hard. Claire was precious today, thanks for letting me spend some time with her. Love you guys.

  29. Thanks so much for these posts. We’re all thinking about you and your family, and praying for strength. Thanks for the news about Autumn and Heidi. Wish we were in town to help.

  30. Tyler and Tiffany,

    Please know that the Catalano Family in Colorado is praying for your sweet Claire…and that we will continue to pray. Thank you for the updates. Much love to you.

  31. Hi Tyler and Tiffany –
    I was just reading Claire’s story from C.O.L.E’s foundation. My heart goes out to you and I am on my knees in prayer for a miracle for sweet Claire. I am not sure if anyone has shared a similar story and a miracle indeed of a little boy in Utah named Bronson. I thought you might be encouraged to know about him and maybe connect with his family. He nearly drowned a few months ago and has had a full recovery. He went through similar steps that Claire is going through now. Here is a link to his blog where is near drowning story begins… remember there is a happy ending though: http://stakerzxposed.blogspot.com/search/label/Bronson?updated-max=2010-02-02T10%3A25%3A00-07%3A00&max-results=20
    Praying for a very happy ending for you as well!!

  32. Tif, Tyler, Autumn, Heidi, and sweet little Claire,
    We just got the news yesterday morning, and everything just stopped….how can you live in a country and your heart in another?? that’s what I, or we, felt yesterday. My heart just left to go with you at this moment.
    Our heart and prayers are with you guys. We’ve been trying to call you, but nobody answers, please send us a number where we can reach you guys!
    we send you all of our love….energy….and prayers.
    we miss you so very much!!!!!!!!!
    maria, rodrigo, mateo and mia

  33. Hey Martin Family,
    thankyou thankyou thankyou for letting us or me have fun and spend time with the girls! All the time I love to hear Heidi talking about things that she doesn’t know, asking questions about God and what he will do to create HIS miracle! Autumn on the other hand is a strong old sister and that is why I have decided to give her my itouch because as an older sister, staying strong, she deserves it!! Now your sweet Claire! Even though I wasn’t old enough to go in the room, I still think and pray about Claire and what I can do to help the miracle even though I can’t create it! Everyday I rewrite “CM” and a heart around it on my hand to keep on reminding me about her so it practically tells me to think about her and y’all and to pray BIG TIME!!! She is even my screensaver on my iPhone and that is another way to help me keep Claire in mind! Well anyways thanyou SO much for letting is take the 2 remaining and would love to have them again! Right now I am going to thank the Lord for puting precious and strong, loving people in my life and that y’all are such a blessing to know!(: Thankyou again and stay strong! I love y’all! And baby Claire is always with me in my mind!!!

  34. Tyler,

    I read your story about Freebirds and you should not at all think twice about how people feel when they hear your story. It should cause them to pause and think. We ALL need to learn from your experience. I have told every mother I know and they have been deeply affected. It makes us all stronger parents.

    On another note, I realized that I am only 10 minutes away from the hospital. If you EVER need anyone to run up and sit with Heidi & Autum or Claire, or bring something up to you, do not hesitate to call. Seriously – Day or night, weekday or weekend. Doug has my cell.

    Jill

  35. It’s amazing how many people are praying for you. I talked to my Mom yesterday and she has been praying all week for a little girl named Claire and didn’t even know it was your daughter. You have a serious prayer network going on, so have no doubt God is with you and Claire as you go through this difficult time.

  36. I heard about Claire through IBC mops, but I mentor for Alpha, so I haven’t met you…. I know waiting is so hard, but I am flabbergasted by the way God has taken the days and multiplied it exponentially in terms of people praying. Every day that has passed has pulled in hundreds and hundreds more people! The pain of your waiting will result in God being glorified so, so much farther.

    Just as it says in II Peter 3:9 – The Lord is not slow in keeping his promise, as some understand slowness. He is patient with you, not wanting anyone to perish, but everyone to come to repentance.

    I hope you realize how hugely meaningful your updates are, as well. Praying for Claire, you, your girls, and all those who may be saved by this.

  37. Tyler, Tiffany, Autumn, Heidi & Claire

    We just received a request to add your family to our prayer list. We are a small church in N Carrollton with 76 prayer warriors that will be praying daily for you and especially little Claire that God would pour out a miracle on her little body. God’s power at work in us can do far more than we dare ask or imagine. Ephesians 3:20 (CEV) If we can be of more assistance, please don’t hesitate to call and anytime, my cell # is 972-672-0414.

  38. A young body has the ability to heal and Claire is showing so many positive signs. I am sending you a link to my husband and sons singing “The Prayer”. Two reasons: It is a wonderful prayer and secondly, my oldest son (singing in Italian) has brain challenges and he has overcome more than anyone ever expected. God and all his angels are with you. Love to all of you, Joane

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