Hi, this is Tyler’s sister, Emily. Since Tyler and Tiffany are focussed on Claire’s post-op recovery right now, I thought I’d try to answer some of your questions.
The doctors’ intention to move Claire to the Our Children’s House at Baylor is one more step toward her recovery. Our Children’s House specializes in preparing not just the child, but also the child’s parents for the day-to-day routine of life and rehabilitation at home, as well as connecting them to a network of experts who are available for advice and support. While Claire’s doctors will not move her there until specific goals have been met in her recovery, it is an excellent facility. If you want more information, their website is at http://www.baylorhealth.com/About/FactsStats/FactSheets/Pages/OCH.aspx.
As far as the G-Button goes, it is only one more tool to help in Claire’s recovery. It can be used as little or as much as necessary, depending on Claire’s ability and willingness to eat orally, and it can also be used to administer medications. If at some point Claire’s G-Button is no longer needed, it can be removed, and the place where it was will heal over much as a person’s skin heals after a piercing is no longer in use. Ultimately, however, its duration is entirely dependent, like so many other things, on Claire herself and the rate at which she recovers. Wikipedia.org offers a decent explanation of the functions of a G-Button and has some useful external links. If you are curious the website is http://en.wikipedia.org/wiki/Feeding_tube.
Tyler, Tiffany and our entire extended family thank you so much for your love and concern toward Claire and toward us. While I can more than understand your desire for more detailed information, some of these topics are still difficult for them, as parents, to discuss precisely because so much of the process is still wrapped up in “wait and see.” I can also assure everyone, having met them myself, that the entire medical staff at the hospital are ridiculously awesome, and that her doctors are not only extremely competent but they are all personally invested in Claire’s recovery. They are making and will continue to make the decisions that are best for our girl. Thank you all for your truly amazing support, and also for your continued patience in letting Tyler update us only as much as he is able to do so, and at his own pace.